#IceBucketChallenge

abbywellskd —  August 8, 2014 — 1 Comment

I think by now if you are living in or around Boston you have heard of the #IceBucketChallenge to #StrikeoutALS.  The Ice Bucket Challenge was created to raise awareness for support of ALS and more specifically Pete Frates.  Pete is a former Boston College baseball captain who is battling the disease. If you are nominated to complete the challenge, you must film yourself pouring a bucket of ice water on your head, after nominating others to complete the challenge within 24 hours.  By now you have probably seen Pro Athletes, friends, family, and even politicians completing this challenge.

While watching Pete Frates’ video on his site, I learned what rewriting the end of ALS meant to him.  “Rewriting the end of ALS means raising money to get better research for treatment and ultimately finding a cure.”  So if you head over to karmadata, we can dig into the research part of ALS.  You are able to see below that the number of Industry Sponsored ALS trials are declining.  As Pete said, the way to a cure is through research.  We need to raise the amount of research that is being done.

ALS TrialsIf you head over to Sponsor Finder and search for ALS Trials, you will see that there are only 8 companies actively conducting ALS clinical trials.

ALS

 

Lastly, this data card below shows government funding.  John Hopkins University being the top organization who grants money to ALS.

ALS_Grant Money

 

So what does all this mean?  This challenge is to create awareness for ALS and I believe it is working.  When I log in to facebook, it’s the first thing I see and it fills my news feed from top to bottom.  By creating awareness, we are able to become more knowledgable on ALS and more likely to donate to the cause, which will hopefully result in more research.  With all of the visualizations on funding and number of companies/trials, you can see that ALS may not be something people are too aware of.  The Challenge will definitely not cure anything right away, but it is a big step in the right direction!

A couple of us here at karmadata have already donated to ALS and completed the Ice Bucket Challenge, even our CEO Sean Power who completed it last night!  We urge you to visit petefrates.com and donate!  You can also check out the sweet Frate Train gear at petefrates.storenvy.com

 

Indicate Investigators is an app in the karmadata gallery that was created to search a “disease of interest” and return a list of top Investigators within that disease.  Now we have added the option of not only searching by disease but being able to search by drug class.

Drug Class-MonoWhen you open the Indicate Investigator app, right away you are able to pick either Drug Class or Disease.  For example, if you wanted to search for Monoclonal Antibodies (which is popular in treatment of cancer and autoimmune diseases), you would pick drug class and then start typing it in as it autocompletes.  You are also still able to toggle back and forth between drug class and disease once you are fully in the app.

 

Vaccine Trials Data Card

karmadata enables users to visualize and simply query the world’s healthcare data.  So why can’t the excel download sheets be simple to navigate as well?  Now they are!  The format of the existing download has greatly improved.  We have cleared away unnecessary columns and provide only the information that is important to you.  We have organized the columns and also added a different tab for clinical trials.  Now the user is able to toggle back and forth between a tab for clinical trials, and a tab for sponsors.

excel downloadThis download is clean, simple, and user friendly.  Feel free to jump up and down (like we did) when you realize how painless this excel sheet is to navigate through.

At the karmadata HQ the developers have been working diligently to create more filters to expand the abilities that Sponsor Finder has.  There have been multiple additions already and we want to share them with you.  The first addition that has been made is the visualizations of trial timelines.  This gives the user the ability to quickly see a comparison between the actual vs. expected for a trial as well as different events that have occured.

trial timeline

After running a Sponsor Finder search, you will be able to find these visualizations by clicking on the number of trials in the middle of the green circle.  This will bring you to the list of clinical trials page.  Right away you are able to see the trial timelines right under it’s trial listing.

karmadata___Sponsor_Finder

 

Some of the events that you would be able to see on the timeline include: original/actual start and end dates, addition of trial sites, when a trial is announced, and enrollment dates.  The blue line is the current timeline and grey is the original timeline.  This will give our clients the ability to easily see trial delays/events instead of having to dig into the source.  In the end, saves you and your team time-which is what Sponsor Finder aims to do!  More updates on Sponsor Finder additions to follow.

California leads the way with roughly 8k EHR Meaningful Use Installs

California leads the way with roughly 8k EHR Meaningful Use Installs

On Monday, June 16th we were all ears when it came to NPR’s Morning Edition.  NPR’s Eric Whitney interviewed and featured karmadata on the segment Power to the Health Data Geeks, after karmadata won an award for myHealth.io at the 2014 Health Datapalooza.  We were very excited about this feature, almost as excited as when a new data set is released.

NPR News

NPR News

Listen to full interview here:

 

DatapaloozaTue-113

We are pleased to announce some exciting new features just released to our Sponsor Finder app.  We have expanded the search capabilities for clinical events, enabling you to search among 10 different events in the clinical trial timeline.

karmadata Sponsor Finder Enhancement - Event Driven Data Mining

With the new Clinical Trial Events search box, located at the bottom of the search options, you can select one or more of the available options which include:

  • Announcement
  • Started (in the past as well as in the future)
  • Enrollment Started
  • Enrollment Completed
  • Delayed (if the trial completion date gets pushed out during trial enrollment)
  • Completed (in the past as well as in the future)
  • Withdrawn
  • Terminated
  • Suspended
Attach a timeframe to the event to further refine your search.For example to search for trials completing in the next 180 days, simply select Completed from the Clinical Trial Event selector and then Next 180 Days from the time selector.  For more customized timeframes, select before, between, or after to prompt a date selector.Enjoy, and as always feel free to reach out with comments or suggestions.

trials_completing_next_6_months

Select clinical trials completing in the next 6 months

The patient facing service created by karmadata wins an award for providing meaningful information to patients at the 2014 Health Datapalooza, a gathering of over 2,000 of the nation’s healthcare experts, which was held on Tuesday in Washington, D.C

WASHINGTON, June 5, 2014 /PRNewswire-iReach/ — karmadata (www.karmadata.com) today announced the launch of MyHealth.io, a website that provides patients in need of surgery the ability to find the best surgeon in their area based on each surgeon’s volume and the quality of his or her affiliated hospital. On Tuesday, myHealth.io received one of three financial awards from the Health Data Consortium at the 2014 Health Datapalooza, and the karmadata team had the honor of presenting MyHealth.io to over 2,000 healthcare data experts and patient advocates from around the country.

myHealth.io is our opening salvo in creating free tools for patients, putting them in the driver’s seat for making informed decisions that impact their own healthcare,” said Sean Power, founder and CEO of karmadata. “Each year there are millions of surgeries performed in the U.S. and most patients have absolutely no way to comparison shop for their surgeon. Most surgical patients end up accepting a blind referral, typically from their primary care physician, without having access to important information.”

myhealth.io_map

“The release of physician identifiable data from Medicare has changed all of that,” said Brendan Kelleher, Chief Data Scientist of karmadata. “We link surgical volumes by surgeon for each procedure to data on the surgeon’s hospital. This allows the patient to not only see which surgeon has performed the most procedures, but also specific quality ratings on the surgeon’s affiliated hospital drawn from patient surveys and quantitative performance metrics released each year by CMS. Now comparison shopping for a surgeon using important factors such as volume and quality is easy.”

“My job is to think about each patient’s experience on myHealth.io,” said Yesi Orihuela, Head of Design and UX of karmadata. “We built the site for healthcare consumers, not data or industry experts. Your journey on the site starts by entering your zip code. From there you are led step by step through a body map to find your surgery, a list of surgeons that perform it, and a map and data visualization that make it easy to identify and locate the surgeon that is best for you.”

About karmadata and MyHealth.io
karmadata is the world’s healthcare (big) data, simplified. Using big data and cloud technologies, karmadata is able to standardize and link the world’s healthcare data ranging from leading open data sources to private pharmacy and medical claims. karmadata created myHealth.io as a free service to patients to enable comparison shopping for surgical services and will expand to enable a broad range of healthcare consumer activities. Learn more by visiting www.karmadata.com, www.myhealth.io, or by following them on Twitter @karmadata @myhealthio

About the Health Data Consortium
Health Data Consortium is a collaboration among government, non-profit, and private sector organizations working to foster the availability and innovative use of data to improve health and health care. The Consortium advocates for health data liberation; promotes best practices and information sharing; and works with businesses, entrepreneurs, and academia to help them understand how to use health data to develop new products, services, apps, and research insights. Learn more at www.healthdataconsortium.org or @hdconsortium on Twitter.

karmadata_Cancer_Investigators

 

 

All these investigators have run trials in the last 5 years.